Posted by My OB said WHAT?!?.
Posted by My OB said WHAT?!?.
“Your Baby Has A Hydrocephele.”
“Your baby has a hydrocephele.” – OB stated the results of the ultrasound and then turned around and walked out of the room.
Some doctors do that because they honestly don’t remember that the average person doesn’t know five thousand medical terms and their associated outcomes.
Some doctors do that because they really aren’t people-people; they went into medicine for the tech and the lifesaving aspects and like being heroes, and when they have to deliver bad news, the skill set isn’t there.
And some few doctors love to have people groveling for information because it gives them a sense of power.
I hope this doctor was just leaving the room to grab a textbook where he’d show the parents pictures, diagrams, charts, and all the information they’d need to deal with their baby’s condition.
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I think my reaction to this post would be the same as if it actually happened to me (It didn’t & I hope it never does by the way).
“WTF is hydrocephele (someone pls fill me in)? Insert puzzled, confused & dumbfounded expressing here
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Anne Reply:
July 30th, 2010 at 4:31 am (Quote)
okay – just googled it!
Now, I hope this mumma was able to find a compassionate person to give her the support & information she needed.
I have seen these kids a the special needs play group that a friends Downs Syndrome boy goes to. I don’t know if I would/could cope.
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Jane Reply:
July 30th, 2010 at 5:45 am (Quote)
I see you got information. But the information the parents needed was how severe it was, how it was likely to impact the pregnancy and the baby’s development, how the doctor intended to manage the pregnancy from here on out, whether the doctor wanted to refer them to a maternal-fetal specialist, whether the doctor still felt competent to deliver the pregnancy.
If the mom didn’t kow what it was before the appointment, then she wouldn’t know how to spell it to google the thing afterward. If the doctor didn’t step back in and explain, she would have had every right to go bang on office doors until the doctor came out and answered her questions.
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A friend of mine has a daughter with this condition. She was told that *if* her baby survived birth, she would never walk or talk.
They wanted to schedule cesarean (which seems so counter-intuitive!). She said that in her gut she felt a vaginal birth would force the excess fluid out of her baby’s head, and she was right. After the birth, the actual amount of fluid was way less than originally expected. The vaginal birth actually compressed and drained enough fluid to buy her a few hours between birth and surgery. They still had to insert a shunt, but looking at her dd now, you would never know.
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CCindy Reply:
July 30th, 2010 at 7:10 am (Quote)
What a great story. I will never understand why doctor believe that vaginal birth is risky for the baby and c-section is safer. I’ve seen numerous studies proving that the compression or hormones is good for lung function. Why do they forget? Of course I also don’t understand why the subject high risk women to pit rather than just schedule a c-section in certain situations?
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Sarah Dorrance-Minch Reply:
July 30th, 2010 at 12:56 pm (Quote)
My sister in law has hydrocephalus, and a shunt. Every now and then something goes wonky, she has a severe headache and mood swings and a bunch of other problems and needs to have the shunt replaced or repaired (once every few years or so) but aside from that, she leads a “normal life.”
I read somewhere that Billy Graham, who is in his nineties, is hydrocephalic. I don’t think he has a shunt, but hydrocephalus probably comes in degrees like everything else.
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I wish doctors were more compassionate about delivering news like this. I am sorry to the OP that s/he was so abrupt and didn’t even have the courtesy to explain what was going on and possibly ease any fears. This story reminds me of when I was in my early 20s and at a yearly physical, the doctor (at a walk in clinic, since I was away at university so I didn’t have a family doctor in the city) said, “You have a lump in your breast.” and walked out of the room. Nothing about if he thought it was benign or something to worry about (like my current family doctor did when I found another one years later, both were nothing to worry about), or what tests he wanted me to have done to find out what it was. It was scary as hell, I can only imagine how much more scary to must have been when the news was about your baby.
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This wasn’t my story, but rather a friend of mine. She said she, her husband and her mother were present for the results and the doctor literally left the room like it was no big deal after announcing the news. I think my jaw hit the floor when she told me that!
But the silver lining: after the mom broke down in tears when Dr. Ding Dong left the room, *her* mom got mad and chased the doctor, ripping him a new one in front of the entire staff for being so callous. Mom said she could hear her mother yelling from in the office LOL! and the staff later congratulated her for doing that, because apparently he had a reputation. The doctor came in and grudgingly explained what it was to them, tail between his legs.
The good news: her son is a perfectly healthy six-year-old and whatever it was resolved itself.
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Jane Reply:
July 30th, 2010 at 11:11 am (Quote)
Praise God for angry grandmas who don’t want to see their own daughters treated like dirt!
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Sarah Dorrance-Minch Reply:
July 30th, 2010 at 12:58 pm (Quote)
This one definitely has a happy ending. Both for the baby and for the mother.
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Cmat Reply:
July 30th, 2010 at 1:09 pm (Quote)
Wow, go Grandma! That’s awesome. Not only that she ripped him a new one, but that the little boy is healthy.
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The Deranged Housewife Reply:
July 30th, 2010 at 5:59 pm (Quote)
I know the grandma, too, so yes – you could definitely say she doesn’t take any crap from anyone and calls it as she sees it. LOL
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Dee Reply:
July 30th, 2010 at 3:16 pm (Quote)
Awful story, but I love the resolution! Go Grandma!! And I’m glad to hear baby was fine as well.
dee
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JulietsButterfly Reply:
July 30th, 2010 at 5:22 pm (Quote)
Yay for the happy ending! That’s one wicked grandmother! Congrats to her for standing up for her daughter and grandson.
One of my cousins has a baby with hydrocephalus and they’re still working on the shunt’s adjustments so it doesn’t drain too much or too little. I think he’ll have a pretty decent chance at life. They’re usually not too hard to treat, but they are definitely scary if it’s happening to you!
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I know a couple who had a similar experience when their pediatrician announced that “It’s Downs” and walked out of the room. They were young first-time parents and totally terrified. I think some medical professionals get so used to what they see and do every day that they forget what a life-changing moment it is for other people. It’s important for all of us to remember what if feels like to be on the other end of the diagnosis.
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I wonder if part of it has to do with the fact that the doctor doesn’t really want to deal with the counseling or emotional aspect of these diagnosis. A lot of doctors go to med school because they were good at science, enjoy the pathology, but had no interest in the emotional or psychological side of it, so when it comes up they try to get it over with as quickly as possible.
An analogy might be me — I went to law school and became a lawyer because I enjoyed reading and was interested in the analytical side of the law, but I have no interest in going to court (which most people assume is what all lawyers do, just like they assume all doctors “care about their feelings”).
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This sounds like a TERRIBLE episode of candid camera! Like you expect the OB to come back in ten seconds later with “Just kidding! Everything’s fine!” Yeah, except the massive trauma to the Mom just now…
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